“A lot of people tell me “you’re so lucky” after they hear my story. Well okay, first they say “OMG, I’m so sorry” and then they say “you’re so lucky.” But what is luck anyways? Would you have told me I was lucky three years ago when I was literally given a death sentence? Luck is defined as success or failure apparently brought by chance rather than through one’s own actions. In other words random. But I don’t think this was random…how could it be? That was when I decided to be in control of my “luck.” You are probably thinking “Grace, that’s not how it works.” But, why not? It’s your life. Make it that way.”
Grace Wethor was diagnosed with brain stem glioma at age of 13. She is the Author of #1 Best Selling book “You’re so lucky book”. She also is Teen Vogue “It Girl” and Nickelodeon Actress.
At age 13, Grace was diagnosed with a brain stem glioma (a tumor in the pons of the brain) by MRI.
Grace’s journey has been a very different story then you are used to hearing. Due to the location of her tumor, it was classified as inoperable and chemotherapy/radiation had a slim chance of working. There is no medical treatment currently available for her tumor so she has been living life to the fullest for the past three years with it.
Grace’s motivation to fight and do the things she does for the community comes from her building relationships and seeing her friends fight the same illness. From touring with her book to speaking at TED & Camp Mak-A-Dream, Grace’s main goal is to support others on their brain tumor journeys and hearing their stories is what motivates her to keep going.
Grace’s biggest hindrance is differently the lack of medical treatment/knowledge for tumors in the brain stem. Due to the location, it is hard to biopsy or evaluate tumors in that region. Because of this, there has been a lot of guesses and assumptions about how the tumor will perform in the future.
“My message for other people currently fighting is to connect with the people around you. When I was first diagnosed, I remember feeling like I was the only one, and once I started projects such as “You’re So Lucky” & “We Can Beat This”, I realized it wasn’t true. So did the others involved in the projects! Get to know your fellow survivors because they are the only ones who truly understand what it’s like to fight this.”
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