Multiple Myeloma Survivor Stories

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Daughter Of Myeloma Fighter Shares Her Journey

Myeloma Fighter
“Believe in Miracles”.

Siobhan Moxhay’ mother was diagnosed with myeloma on 31st December 2015. She is fighting her disease.

The Diagnosis

“My mum was diagnosed on 31st December 2015 after a hospital admission.”

The Journey

Myeloma Fighter's Journey

“She was rushed into hospital on December 27th 2015 with chest pain and feeling unwell. They did tests and found she was extremely anaemic, they thought she was bleeding internally and had told her that she was very sick and they were going to keep her in and take her to a medical investigation unit! 4 days later Mum had a bone marrow biopsy, and in hours we were moved to a cancer ward, but we didn’t know what this ward was. On that day, 31st December 2015, at aged 46, my mum was diagnosed with Myeloma and was told that she was incredibly lucky to be alive. If she hadn’t have come in when she did, even a day later, she would have died. Cancer had taken over her whole body. She had it for at least a year and we had no clue. We were told after her cancer is terminal, there is no cure, most patients can live 5 years on average, but because of mum’s other health condition and her age, they couldn’t tell us how long she would live. Their best guess was 1-2 years no treatment, 3-5 years with treatment, or longer if we try transplant. They have said this whole time, if she makes it to 60, that will be a miracle. I was 18 when she was diagnosed, and on the 3rd of January spent my 19th birthday with my mum at the hospital. We are now coming up to 3 years since diagnosis. She fights every day, through everything, she fights for herself, for me, for her family, she makes every day feel special! Her goals are to see me graduate my 3 courses, she has seen 1 of those, still two to go in 2019 and 2020, She wants to see me have children, marry my fiancé and see me grow up! She tells herself every day that she is going to keep fighting, a cure will be found, she will one day be able to say she beat Myeloma. She isn’t going to let this defeat her. Both Mum and I have found it hard to deal with this. Her 2nd stem cell transplant came with the possibility of her not surviving. We needed to get to 18 months post-transplant for her to be able to have another! She has said she doesn’t want to be on chemo for the rest of her life, but she will do it so she can be around longer and make sure a cure is found. I care for her full time while working, going to university, and having my own medical conditions! But I wouldn’t have it any other way. As much as we wish she never got cancer, it’s been a kind of blessing, we’ve met so many amazing people, we’ve done so many things we wouldn’t have done if Mum was well, and most of all, it’s made me and Mum stronger and made us closer than ever. She is my best friend, my hero, the person I always look up to, she is amazing!”

Motivation to fight cancer

“Mum’s biggest motivation is that hopefully one day soon there will be a cure for her cancer!”

Biggest hindrance

“Mum knowing that at any point it can all change, treatments can stop working and that could be it for her.”

Message to other cancer patients

Message for cancer patients
“To keep fighting, even when you feel like rubbish and feel so sick, keep fighting in the hope a cure will be found to help you”

Multiple Myeloma Survivor Becomes A Poet

Multiple Myeloma Survivor Becomes A Poet
“’No one fights alone’, ‘Let’s do this!’, and ‘I wish cancer would get cancer and die’”
Cedrik was diagnosed with multiple myeloma in June 2012. He has successfully defeated his disease and now works to inspire others. He is also a poet and published some of his masterpieces in the book ‘Womb’. He is also going to write his own book and launch it very soon.
 
The Diagnosis
 
“I was diagnosed with Multiple Myeloma cancer in June of 2012 after suffering a month-long severe pain in my lower back.”
 
The Journey
Multiple Myeloma Survivor's Story
“It was the compression fractures, symptoms of cancer, that caused the pain. Three days after my diagnosis I was admitted to the hospital with a bad case of pneumonia. This was a result of my immune system shutting down after being prescribed Dexamethasone. During a month-long stay, I almost passed away while spending five days in ICU, hooked up to tubes and all. After my stint in ICU, I was transported multiple times by ambulance from one Kaiser hospital in Downey to another in Hollywood for my rounds of radiation. After my release from the hospital in early July, I couldn’t start my chemotherapy until the fluid in my lungs from pneumonia disappeared. Chemo started in September and I was in remission by January 18, 2013. After missing nearly a year of work, I returned in April of 2013, when I continued to be an educator. I continued to live a new normal life, life after cancer, where a lot had changed. I do have my down days yet I have more good days than bad days. I’m on a maintenance treatment plan and continue to ‘live to inspire’ as I survive. I have become a spiritual and emotional support provider for many friends, family, co-workers, and strangers through social media, who are dealing with or know of someone dealing with cancer. I have also contributed to a Cancer Club at my workplace (a high school). I write poetry and short writings inspired by my journey with cancer and post them through Instagram @poeticsoldier. I’m also in the process of writing my debut book, “WHY I CRY BURGUNDY TEARS”. An inspirational book of testimony and poetic writings about my journey with cancer. Burgundy is the colour of MM cancer. ”
 
Motivation to fight cancer
 
“My life. To live for myself. To live for my family. To live to inspire. I want to go on my own terms.”
 
The biggest hindrance
 
“Even though I didn’t work for a year, my new way of life during that year was very challenging. After the first month in a hospital, my days were filled with waking up early for appointments. When I did not have a doctor’s appointment… I had chemotherapy sessions, various specialist appointments, lungs/respiratory appointments, lab/blood work, X-rays/scans, various medical procedures/infusions, etc. I also had a physical therapist, an occupational therapist, and a nurse going to my home weekly. I had a lengthy process where I had my cells collected for harvesting in case I decide to have a bone marrow transplant.”
 
Message to other fighters
Message for cancer patients
“Remember that you know your own mind & body better than anyone or any doctor. Follow it and know your own limits. However, follow the doctor’s orders in regards to particular treatments, etc. And stay as positive as you can throughout the entire journey.”
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