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Fighters Stories

Leukaemia Patient Shares Her Journey


Assia leukemia fighter

Favourite quote:

“We can’t direct the wind, but we can direct the sails.”

Assia was diagnosed with leukaemia in 2017. She is 20-year-old cancer patient hoping to raise awareness and inspire hope into the hearts of those also fighting cancer.

The Diagnosis

“The story of my diagnosis is a strange one. I was lying on my bed during the summer of 2016 when I noticed that there was some hyperpigmentation on my stomach. I did not pay much attention to it and after showing it to my mum, we thought it was probably just normal considering my skin tone.

Fast forward a few months later and we noticed that it had spread all over my back and thighs. I visited the doctors, where I had a blood test. The results showed nothing alarming and so I assumed nothing was wrong with me. However, the pigmentation spread further and by the beginning of 2017 I had noticed that I was constantly exhausted, I lost my breath easily and quickly, I was waking up every morning with severe muscle cramps. Sometimes the muscle cramps in my legs were so severe that it hurt to walk.

After seeing several doctors I was referred to a dermatologist at the hospital. On the day of my skin biopsy, I had a blood test which revealed some abnormalities. I was referred to a haematologist. A month later I had a bone marrow biopsy and two weeks later I was diagnosed with acute lymphoblastic leukaemia. It was unexpected for everyone around me, however, for some reason, I had sensed that it was coming.”

The Journey

Assia leukemia fighter journey

“My journey has been a tough one. It has been a rollercoaster ride and completely unpredictable. I have grown closer to a lot of people in my life, I have had extravasations, two PICC lines inserted and later removed due to blood clots, a Hickman line insertion, I have lost my ability to walk and gained it again, I have had several allergic reactions to chemotherapy drugs which almost killed me, I lost my hair, my face quadrupled in size and I have vomited quite a lot.

However, it is a journey I am grateful for as it made me a different person. I now live with purpose, I go to sleep looking forward to another day and I spend a lot more time with those whom I love. If I was, to sum up, my cancer journey in a few words I would say: frightening, excruciating, but filled with love and support.”

Motivation to fight cancer

“My biggest motivation is my faith. I am a Muslim and God reminds us to be patient and to have faith in times of difficulty. There are people in my life that I don’t want to leave and they also gave me a lot of strength.”

Biggest hindrance

“My biggest hindrances were the lack of emotional intelligence from those around me, which made me feel very isolated and alone at times. I mean, I don’t expect people to understand what I am going through and I understand that it is almost impossible to do so, however, I would like for people to be careful with their words and to remember that I am not like them nor are they like me.”

Message to other cancer patients

Assia leukemia fighter message

“Have hope, hope goes a long way. I know that you may feel weak, you may cry yourself to sleep some nights, you may feel like a burden on your family at times. However, you have control over how you react. Live in the present. Go out in the fresh air. Read a book. Clear your mind. Allow yourself to FEEL and be real with yourself. Give your body a break. But have hope that this will pass and that you are strong enough for this. You are powerful and you have got this.”

If you also want to share your experiences with other fighters across the globe, then please mail us, so that we can share the details with you. 

Join our community of fighters and survivors, motivate and uplift each other to fight cancer together.


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