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Introductions

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This topic contains 33 replies, has 13 voices, and was last updated by GlassHalfFull glasshalffull 1 day, 12 hours ago.

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  • #10046
    GlassHalfFull
    glasshalffull
    Participant

    Hello fellow warriors! My name is Maria and I am glad to still be alive and kicking!

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  • #10043
    Cancer_bro
    cancer_bro
    Keymaster

    Let’s welcome our new member

    @angiewillis63, @browncl23, @glasshalffull, @rstrown, and @serenitylove7.

    Kindly introduce yourself to other community members so that we can know each other better

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  • #10010
    Cancer_bro
    cancer_bro
    Keymaster
  • #9847
    Cancer_bro
    cancer_bro
    Keymaster

    Let’s welcome our new members –

    @fulyaonay, @amytribble, @murandlou, @kayleigh, and @davidson.

    Kindly introduce yourself to other community members so that we can know each other better

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  • #9717
    Cancer_bro
    cancer_bro
    Keymaster

    Let’s welcome our new members

    @mishasakharoff, @kid13of17, @jacklyn, and @kinley.

    Kindly introduce yourself to other community members so that we can know each other better.

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  • #9649
    Cancer_bro
    cancer_bro
    Keymaster

    Let’s welcome our new members

    @carmen, @astrogirl, @cockoffcancer, @equinox, @emccomb, @b-eze, @andreyalencar, @tenntate12, @riza, @manu, @mistymike, @hkuepper224, and @meenamani.

    Kindly introduce yourself to other community members so that we can know each other better

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  • #9567
    Astrogirl
    astrogirl
    Participant

    Hello fellow brain fighters. I’m Mihaela, a Bulgarian born and raised, living in France. My brain cancer journey began in August 2018 with a grand mal seizure at work. I was rushed to the hospital and the verdict came out quite quickly after a 4-hours surgery. They took out 95% of the mass – an astrocytoma grade 3. My neuro team has been very supportive from the very beginning. My treatment – 30 sesions of radiotherapy, that I’ve already finished yeah!! No side effects apart from the funky haircut (half-shaved head), surprisingly my hair started growing back just 2 months post treatment, I guess I’m quite lucky on this one. I’m starting PCV chemo this Friday and I’m looking forward to it. 6 months after the initial diagnosis I feel normal, facing a massive challenge I never though I’ll have to deal with in my early 30s. My soul is calm and I’m ready and determined to beat the odds. Wishing you all a peaceful journey through the brain cancer maze. Don’t be scared of all the numbers, statistics and the stigma around brain cancer, they don’t necessarily apply to you 😉

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  • #9556
    Cancer_bro
    cancer_bro
    Keymaster

    Let’s welcome our new members

    @stachestrong, @amy112012, @rina, @abbyelayne, @reidoliver, @jacquelinp, @garrico, and @eddybrowns.

    Kindly introduce yourself to other community members so that we can know each other better

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  • #9491
    Cancer_bro
    cancer_bro
    Keymaster

    Let’s welcome our new members

    @jennibear, @leeandazzie, @lysap, @warrior4ever, @bkaxo, and @evan.

    Kindly introduce yourself to other community members so that we can know each other better 🙂

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  • #9419
    Cancer_bro
    cancer_bro
    Keymaster

    Let’s welcome our new members

    @mendoza90nica, @maryross, @bartljam, @leiah, @harmonydiva, @lubeck, @sac6225, @followyellowbrickroad, @kylene, @mounthollykaren, @tuffliketoby, @living_with_cancer, @beckyellen89, @fletch, @rudini, @w2pmultisport, @jasonscott, @cristinderoiste, @sami-doria, @mel_currie, @denisecrank, @lindal, and @headstandup.

    Kindly introduce yourself to other community members so that we can know each other better 🙂

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  • #9264
    Jballin62
    jballin62
    Participant

    Hi Ammy welcome to cancerbro. I wish you a speedy recovery on this ongoing battle of yours. I know its tough but you’re never alone we are with you every step of the way.

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  • #9263
    Ammykins
    ammykins
    Participant

    Hi, I’m Ammy,I was diagnosed with an aa3 in November 2016 at 23 I had 2 debulkings a biopsy radio and chemo, still trying to get better 2 years later.

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  • #9219
    Cancer_bro
    cancer_bro
    Keymaster

    Let’s welcome our new members

    @fucancer_hev, @cathie, @superman, @jules, @wcb, and @mwinters.

    Kindly introduce yourself to other community members so that we can know each other better 🙂

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  • #8798
    Jballin62
    jballin62
    Participant

    Welcome everyone !!

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  • #8794
    Sblanken00
    sblanken00
    Participant

    Hello my name is sarah!! 6 weeks after the birth of my husband’s and my first daughter July 2018 I had a seizure that lead to my diagnosis of an anaplastic astrocytoma grade 3 in August of 2018. I had a craniotomy to remove 95 percent and still have 5 percent to fight with chemo and radiation so far I’ve done 6 treatments and feel fine!!

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  • #8793
    FUCANCER_hev
    fucancer_hev
    Participant

    Hello, I’m Heather from Scotland. On day 11 Post-op from an awake craniotomy to resect a glioma. Overall feeling as well as can be expected but got reduced sensation on my left side of my body, reduced vision and slurred speech. I have been in remission from Cervical Cancer for 4 years. I write a blog at FUCancer.co.uk

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  • #8762
    Cancer_bro
    cancer_bro
    Keymaster

    Let’s welcome our new community members – @roseythebosslady, @sophistickann, @kierstankan, @sblanken00, @reshanamarie, @plspicard, @janelle061012, @therealjimmym, and @domdom.

    We kindly request all new members to post an intro so that we all can know more about you 🙂

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    • #8797
      Roseythebosslady
      roseythebosslady
      Participant

      Hi. I’m Rosey Cosme,Wife, Mother if two Young Adults, I’m 39, battling with Glioblastoma Brain Cancer for the past 3 years now. And, I’m also battling with Trigeminal Neuralgia which is a chronic disease for the past 7 years.. I was recently on Remission status meaning I was on Stabled condition until this past August I was experiencing strange and random symptoms decided to seek my neurology team and they were highly concerned requested urgent examinations and that’s exactly what it is.. exactly what I thought, I was diagnosed with a recurrent Glioblastoma. I’m currently on my 4th week of radiation treatment. Amongst other natural remedies & therapy.

      I want to cordially Thank cancerbero.com for the warm Welcoming.
      God bless everyone

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    • #8796
      Roseythebosslady
      roseythebosslady
      Participant

      Thanks for the warm Welcoming.
      God bless everyone

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  • #8503
    Cancer_bro
    cancer_bro
    Keymaster

    Let’s welcome our new captain of our squad- @jballin62.

    We really thank him for being a wonderful part of community and choosing to help other fighters in their journey. So if you have any questions, then you can either post in the support group or directly reach out to him. He will be more than happy to help and guide you.

    A wonderful community is built on the pillars of amazing people like our captains who accepted our invite to volunteer and help as many fighters as possible. We are honored and glad that they are now a part of our community 🙂

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  • #8138
    Sophistickann
    sophistickann
    Participant

    Hi everyone! My name is Laura, and I’ve been fighting brain cancer (well,I guess there’s no way to know exactly how long) for approximately 10 months now. I was having headaches for a while, but they always seemed to align with my menstrual cycle, so I just thought that was the reason for the headaches. Anyway, I had a seizure on November 11, 2017. I had bleeding in my brain, was intubated and sedated for 3-4 days. They couldn’t see the tumor bc of swelling and blood. When they decided I would be able to breathe and wake up, my recovery was swift, so they sent me home two days later after an angiogram to rule out a blockage in an artery or vein in my brain. They prescribed me an anti-seizure med and sent me home to follow up 2 months later. At my January appointment, they did an MRI. The doctors I was following up with were the neuro vein and artery specialists, bc cancer wasn’t on the table at that point. So, they weren’t looking for it. They thought I was healing up nicely. I wasnt having any balance or memory issues. Not having a lot of headaches at that time, but I was still having some tiredness. My brain was still a little swollen and healing from the trauma in November. So, my husband and I were stoked. We went to have brunch to celebrate. That’s when I got the call. I recognized the number as the hospital, so I answered. I don’t really remember too much, other than the words “underlying tumor”. This was a Friday, they told me I had an appointment set up for the following Tuesday with the neurooncologist for a consultation. I didn’t go back to work. Breakfast was weird. A few tears were shed, but I tried to keep it together bc, as I told myself, we didn’t really know anything yet. Went to the oncologist. He said he believed it was a tumor either from the brain or from another part of the body. He wanted to get it out ASAP. So, we scheduled the surgery for the following Friday. The surgery went really well, and I was home 3 days later. I shoud’ve mentioned this earlier, but I am 39 years old. They kept telling me, “you’ll be fine. You’re young and healthy.” About a month out of surgery, we found out I had an infection. So, we ended up in the hospital for surgery again. This time to clean out the infection and take out the infected bone flap (which I still haven’t had put back in. Not sure when I will be ready for that). Anyway, I was in the hospital a little longer this time. I had to get a PICC line so that I could do antibiotic infusions for the next 8 weeks. I was so happy when that was over. So, the second surgery was at the end of February. I returned to work sometime early April, and started back full days a week after I returned bc I didn’t have a lot of leave to work with. I’ve had 2 follow up scans since and everything is still looking good. Generally, I feel good on the day to day. I don’t ever forget about it, but I don’t feel the need to talk about it all the time like I did for a while. Anyway, it’s been a pretty crazy year. I’m sure most of you know what I mean. I was diagnosed with anaplastic astrocytoma, stage 3. This was in my right frontal lobe. It took them forever to figure it out. They couldn’t decide if it was that or anaplastic oligodendroglioma. But, finally they finished the pathology and landed on anaplastic astrocytoma. I feel lucky to get to take temodar as opposed to the iv varieties. Does that sound awful? I feel lucky to not have to deal with the awful side effects of some of the other drugs. I did 6 weeks of the temodar along with radiation. I am now doing maintenance chemo for the next year. Anyway, I’m happy to have finally found a support group of sorts. I wanted to get into one for so long but wasn’t able to find one that was active. TBH, I want trying too hard. I have a pretty good familial and friend support group. So, although I have Brain cancer, I feel lucky in a Lot of ways. This has definitely turned into a novel. Congrats for those of you that pushed through. You rock. I look forward to chatting with you all. Thank you for being here. I hope you are all having a good day. Love and light. Laura

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  • #8056
    Cancer_bro
    cancer_bro
    Keymaster

    Let’s welcome our Brain Cancer Squad captain – @teamcaleb and @angelfaulk.

    We kindly request both of you to introduce yourself to other community members and how you feel after becoming the captain 🙂

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    • #8059
      AngelFaulk
      angelfaulk
      Participant

      Hello everyone! I am so happy to be part of this community and to be a team captain! My heart is filled with joy when I get to share and help others who are facing the same type of diagnosis I received in 2009. I had, and still have, a meningioma on the brainstem. Please reach out if you have any questions or need support 😇

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  • #7988
    Cancer_bro
    cancer_bro
    Keymaster

    Let’s give a warm welcome to our new members of our brain cancer community –

    @sschmitz, @jonobrent, @anggregs, @joshperrybmx, @trace, @lingkoay, @sheriann, @rhianashley20, @kenna, @eviehwhittaker99, @ammykins, @marcsky, @jenwhateverittakes, @mwe41, @norway85, @tjsdreamteam, and @mamaoutpost.

    Kindly introduce yourselves to community members so that we can know each other in a more better way.

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  • #7883
    LingKoay
    lingkoay
    Participant

    Hii people, I am Ling and my mom has been recently diagnosed with Grade III – Anaplastic Astrocytoma. Looking forward to connect with you all so that I can take a good care of her!

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  • #7846
    Jballin62
    jballin62
    Participant

    Hello everyone!my name is Juano Ocampo I am 28 years old and I live in West Covina California, I am passionate about basketball and I’ve fell in love with it since age 7.My brain tumor journey started in June of 2008 during the last month of my junior year in high school.I suffered sever headaches alongside nausea and vomiting, double vision and body numbness. I was rushed to the hospital and was admitted in the intensive care unit and stayed for 3 months there for the first stages of treatment. I underwent chemo a month after it and had 4 cycles in every 3 weeks. My physician also suggested for me to take radiation pills. He decided for me not to go through radiation treatment cause there were severe damage in the brain due to the tumor and chemo treatments.The tumor was gone for almost a year but when the following fall season came right after the week of fall semester in college I had an MRI test and it confirmed a nonoccurence. I was totally devastated and I was crushed inside emotionally. The initial plan from my Doctor was for me to go through stronger doses of chemo. 5 x stronger than what I had the previous diagnosis. PBSC ( Peripheral Blood Stem cell Collection ), Bone Marrow Transplant and finally radiation treatment. 2 years of facing a back to back diagnosis was undoubtedly the worst times of my life but it also defined my character later on. My hopes after treatment was to head back on the hardwood but the early months became disappointments for the impact done from cancer was severe but all would change eventually. I realized that my 2 years of adversity could also become my inspiration to achieve all possibilities. I applied my diagnoses to my passion through their comparison based on their demands. I realized that the demands from basketball isn’t even halfway close to the demands from brain cancer and its treatments. This was such a powerful statement that it eventually inspired me to write a book about my life battling cancer and how it turned to be the biggest blessing in my life. Basketball and Brain Tumor a 2 different things but the demands from the other outweighs the demands from the hardwood. The book is titled IMPOSSIBLE TO I’M POSSIBLE by Juano Ocampo and it depicts my fight against brain tumor and the optimism learned post treatment.

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    • #8463
      Sophistickann
      sophistickann
      Participant

      Happy to have you here, Ling! Hope you and your mother are well. Was your mom able to have surgery to remove the tumor? Is she treating with temodar as well? I have the same cancer your mom has. Where was hers located? Let me know if I can help with anything!

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  • #7823
    Carlinaindreas
    carlinaindreas
    Participant

    Hello Everyone!

    My names Carlin, I’m 29 years old and I currently live in San Antonio Texas. Born and raised in NYC then moved to South Carolina around the age of 13. Grew up always wanting to learn everything! Graduated high school and joined the United States Marine corps where I was retired due to injury. Life had been out of the norm for me when it came to just living it basically. Luck was never on my side and when it rain it poured.

    As I began to feel like things were going in the right direction. I noticed in 2016 I began to get severe migraines that worsened over time, my vision was coming and going and nose bleeds that were just causing puddles of blood on my pillow. On October 5th 2016 I went to my primary and he didn’t know what to think but decided he was going to do an MRI. When he returned he asked me to go to the VA for a second opinion since he knew I was a veteran. I did so and my primary at the VA didn’t break the news to me easy. He let me have it and told me that I had a very rare brain tumor and that based on it’s size and location. We cannot remove it without causing some severe disabilities and maybe even death.

    I didn’t want those options. I just wanted to be normal. I went 3 months without telling anyone. Not so much as one soul. It stayed between my doctor and I and I was still working. That’s when the condition continued getting worse and my oncologist decided it was time to go through chemotherapy and figure out options. Now I’m battling two brain tumors. Acoustic Neuroma and a Pineal Gland Tumor.

    Needless to say I did that, radiation, and a second regimen of chemo. I’m still fighting, but I’m living my best life without treatment. The Pineal Gland Tumor is slow growing but will eventually claim my life. I’m at peace with life, I’m at peace with decisions in my life, I am at peace with what life has been for me. So during this time I am just enjoying life. Traveling to share my story/testimony and doing it for the Glory of God and His kingdom.

    Thank you for this opportunity to be a part of a community that can share the experience and love for one another!

    -Carlin

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  • #7821
    Justjen
    justjen
    Participant

    Hi everyone! I’m Jen, I live in Oklahoma, born and raised. I was diagnosed with a grade 2 (diffuse) astrocytoma in September 2015 at age 28. I had been working as a surgical technologist assisting neurosurgeons since 2007. I did other specialties as needed, but spent the majority of the time in neuro. I began having headaches much worse than any I had previously experienced in summer 2014. I missed work and went to my primary care doctor for help. After the 3rd time this happened he suggested an MRI. A mass was found but it didn’t enhance definitively. I spent 2 months with a neurologist chasing down other possibilities before deciding it must be a tumor. I had surgery and then 6 weeks later I started radiation and chemo. I did 25 sessions of radiation. Then in 2015 I started 8 months of oral Temodar. I took it 5 days each month. After all of that I began to get some strength and stamina back for a couple months. Then my headaches began again, just like before. I get MRI scans every 6 months so we knew it was not my tumor returning. I have had progressively worse headaches since. I have been working on a solution with 2 neurologists and 1 pain specialist with no result yet. My issues after treatment are absolutely not typical. Please don’t think this will happen to you, it very likely will not. I am almost 4 years post op with no sign of regrowth. I blog and join communities like this one hoping to help others.

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    • #7824
      Carlinaindreas
      carlinaindreas
      Participant

      Welcone! You are with us! I will pray for you!

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  • #7820
    Cancer_bro
    cancer_bro
    Keymaster

    Let’s meet our members of Brain Cancer Squad –

    @kiyomiyo344, @bambeth, @justjen, @jonstein, @mattdancho, @jduncan1951, @ragin_rach, and @carlinaindreas

    Kindly introduce yourselves to community members so that we can know each other in a more better way 🙂 ❤

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    • #7822
      Justjen
      justjen
      Participant

      That should be September 2014. I tried to edit, but had issues on mobile.

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  • #7817
    Cancer_bro
    cancer_bro
    Keymaster
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