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Cancerbro - I was diagnosed with a grade 2 astrocytoma in September 2015 at age 28
JustJen Brain Cancer
Posted on Aug. 19, 2018, 5:39 p.m.
I was diagnosed with a grade 2 astrocytoma in September 2015 at age 28
Hi everyone! I’m Jen, I live in Oklahoma, born and raised. I was diagnosed with a grade 2 (diffuse) astrocytoma in September 2015 at age 28. I had been working as a surgical technologist assisting neurosurgeons since 2007. I did other specialties as needed, but spent the majority of the time in neuro. I began having headaches much worse than any I had previously experienced in summer 2014. I missed work and went to my primary care doctor for help. After the 3rd time this happened he suggested an MRI. A mass was found but it didn’t enhance definitively. I spent 2 months with a neurologist chasing down other possibilities before deciding it must be a tumor. I had surgery and then 6 weeks later I started radiation and chemo. I did 25 sessions of radiation. Then in 2015 I started 8 months of oral Temodar. I took it 5 days each month. After all of that I began to get some strength and stamina back for a couple months. Then my headaches began again, just like before. I get MRI scans every 6 months so we knew it was not my tumor returning. I have had progressively worse headaches since. I have been working on a solution with 2 neurologists and 1 pain specialist with no result yet. My issues after treatment are absolutely not typical. Please don’t think this will happen to you, it very likely will not. I am almost 4 years post op with no sign of regrowth. I blog and join communities like this one hoping to help others.